Friday, January 9, 2009
Our little heart sister Jersey is only a couple months old. Yesterday, she earned her wings. She had a complex heart defect and has spent her entire life in the hospital. Her sweet parents got to hold her yesterday and the doctors unhooked all her tubes and wires as she peacefully passed into our loving Saviors arms. Please pray for this hurting family in their grief!
Longing for the day that He wipes away every tear and binds the brokenhearted!
Wednesday, January 7, 2009
Thank you to all who prayed for a seamless day.
For peace in the midst of trying circumstances.
She was even sound asleep in my arms waiting to be wheeled away. I think we covered every possible scenario for what could potentially go wrong and bathed it in prayer. ….Did we forgot to pray that it would actually go through?
One of the physicians failed to show up until an hour after the procedure was to begin. By which time, our Pulmonologist needed to cancel because he had office hours and patients waiting.
We can laugh at the situation already. Such is life with little Evie – nothing ever goes as planned. Perhaps she’s not as healthy as we thought and God has spared us surgery today to give her body more time to heal.
They have rescheduled for the 15th. This means the little princess will be waking up on the morning of her 1st Birthday in a hospital, sore from surgery, coughing up blood from the trauma to her airways, with a PH probe in her nose and a halter monitor strapped around her chest.
…but we will celebrate….it may be later, but she will have her cake…and eat it too!!
The picture says it all…this is how we all felt about getting up at 4:50am!
All decked out in the goofy scrubs, ready to roll!
Tuesday, January 6, 2009
I thought I was so laid back about this surgery until I had to sign all the warnings, disclaimers and “possible risk of death” papers today. Granted, this is small potatoes when you’ve been through an open heart surgery, but never fun to hand your baby over to surgeons.
I hadn’t prepared myself for the obvious fact that she will have to be on a vent. If all goes well, they will only have to Ambu bag her and wont use the tube unless there is a problem. Also, I was told today that they will put her under anesthesia after they have taken her away from us….Evie has a very sour disposition to anyone who comes at her in scrubs (for valid reasons) and will probably go kicking and screaming when they wisk her away. (…and I might have a little melt-down myself!)
Bronchoscopy, insertion of PH probe, UT Catheterization and probing of her blocked duct should take 30mins to an hour.
I will update from the hospital tomorrow night. Please keep the following in prayer:
-that she will handle an empty tummy from midnight until her surgery
-that perhaps she will be asleep in the morning when we have to hand her off
-that breathing function will be excellent and lungs will be clear during surgery
-that she’ll tolerate the probe in her nose overnight
-for answers!!
Thank you praying friends and burden-bearers!
