Sunday, February 3, 2008

Yesterday was a difficult day.  After several days of fighting Evie has been unable to expel mucus that has been building up in her lungs.  This has caused her to be quiet weak and lethargic which is the opposite of what the doctors would like to see.  In addition, she has been taking very short, shallow breaths that are not expeling the CO2 from her lungs. Throughout the day on Friday her levels of gas which they test from her blood at regular intervals have gotten progressively worse.  Late afternoon they did a blood transfusion to get some better readings.  Inspite of the blood transfusion tests continued to come back less than adequate and last evening around 7pm they did an x-ray which identified that she has either pneumonia or a collapsing of the upper respiratory.  Because of this they decided to put her back on the ventilator for at least two days to let her body rest, start using antibiotics and hopefully try to take her off in a few days.  The benefit of the ventilator is that they can control her breathing and expel any mucus build up.

This morning her blood stats continue to stay poor.  Please pray that throughout this weekend Evie would get rest that her body desperately needs.  Pray also that the condition of her lungs would begin to heal.  

Praise.  Yesterday they took out the last of her heart tubes.  Her heart is strong and working well.  Today they will put in and NG tube to begin feeding her stomach with Mandy’s breast milk.

Thank all of you for your prayers and concern in this difficult time.

We continue to thank God for each day he gives and pray that He would be glorified in this little life!

Saturday, February 2, 2008

Evangeline continues to take steps forward.  She remains in the ICU
but is in fairly stable condition.  The first day after surgery was
easier in some ways.  She was so heavily sedated that she slept
soundly.  Yesterday however, the pain medications began to wear off
and it was difficult to watch her labored breathing and see her
wrestling with the pain.  While we want her to wake and continue to
fight for life, it is a delicate balance to control her pain to keep
her blood pressure down, while still weaning her off the drugs to
allow her to breathe and function on her own.

A big praise yesterday – after several “trial runs”, they removed the
respirator yesterday morning.  We walked in to see her wide-eyed,
looking around at a mobile they had placed above her crib.  What a
relief to see those great big blue eyes again!  She was a bit more
placid that the doctors wanted yesterday.  After several days on the
respirator, secretions build up in the lungs that she needs to work
hard to cough up.  (As you can imagine, coughing with a broken
breastbone and a 6 inch incision is painful!)  They had to suction her
a couple times yesterday and “stimulate” her to get her riled up and
coughing and crying.  Pray that her lungs will clear!

They also removed one of two chest tubes yesterday…a line going to
her heart to drain bleeding.  Pray that they will feel confident in
her progress today to be able to remove the second chest tube.  The
more lines they get out, the sooner we’ll be able to hold and begin
feeding her.  After several days of not eating (and diarrhetic
medicine to help flush out retained fluid so it doesn’t build around
the heart,) she has lost a lot of weight.  Pray that she’ll be strong
enough (and remember how) to eat soon!!

Thank you again to all of you who have researched and looked for
accommodations for our family.  We’ve been so blessed by the body of
Christ pulling around us and meeting our practical needs.  Several of
you have spent considerable time looking to make sure we have a place
to stay and we are so grateful!!  We have been provided with a house
within very close proximity to the hospital.   We plan to bring the
kids to be with us this weekend, so it will be a lot of shuffling back
and forth especially as she is able to feed every couple hours.
Praise the Lord for the “Aron and Hur’s” who have held us up and
lifted our needs to the Father.  We remain humbly overwhelmed by His
goodness even in the midst of such pain!!

Keep praying.  Will send more pictures soon, but wanted to get this
off this am before we head over to see our little one!

Wednesday, January 30, 2008

Praying Friends,

We give God glory for his Shalom of peace and assurance over this

critical day. Our dear baby girl made it through surgery and we stand

in awe, amazed at His goodness and presence in such a tough time. We

have seen the body of Christ gather around us supporting, praying and

loving us in sacrificial, generous ways! Indeed, our cup is full and


We both got to hold Evangeline from 6:00 until 7:30 this morning when

they came to wheel her into surgery. Statistics can be good for a

surgery, but that doesn’t matter when it is your baby going under the

knife. It was an emotional moment to kiss her goodbye knowing that

her tiny heart would be stopped for an hour and expected to take over

a new function before we saw her again.

We were so grateful for our parents and a dear friend from our church

who spent the day with us helping pass the time. The hospital has a

paging system and sent us general messages hourly through the surgery

updating us as to how it was going. The doctor asked to meet us at

1:30. What a relief to hear the words that the surgery was complete

without any unforeseen complications. An hour later, they let us into

the Pediatric Cardiac Intensive Care Unit to be reunited with her.

She’s looking rough, but never more beautiful!!

The next several days remain “critical” as they try to stabilize her

and as she reacts coming off of the anesthesia. Please continue to pray.