Tuesday, January 20, 2009
Our follow up appointment was today. We were glad to hear that the cultures of her lungs came back clear. The Pulmonologist then proceeded to tell us that the Dr. running the PH study contacted him and said that Evie’s study was one of the worst he has ever seen.
Im shocked! This means that all these months, she has battled severe acid reflux. Poor sweet baby!
While we have not seen her vomiting, she has been treated aggressively with medication for reflux for months (just in case) which obviously have not tamed the beast. Hers is silent reflux and it is likely that she is aspirating which has caused her chronic lung problems. Its also conceivable that her “failure to thrive” and poor eating is a result of constant GI pain. This could also explain why she still wakes up 3-4 times a night! Hmmmmm….seems like we could be connecting a lot of dots!
Back to Charleston we go to meet with a GI specialist. We are facing a likelihood of another surgery on her stomach and esophagus. This is another incision on her precious little torso. Its another experience on the dreaded vent. Its another healing from a major surgery.
…..but we’ll cross that bridge when we get there.
For today, Im grateful…very, very grateful for the Doctors the Lord has led us to who have been so tenacious and thorough. So grateful there are answers and a plan to help our baby-doll heal and grow!