Friday, October 8, 2010
I always exhale a huge sigh of relief when we walk out of Evie’s 6 month follow up visits with Cardiology.
Standing triumphantly in front of her hospital!
We’ve just returned from two days of doctor visits with her wonderful physicians in Charleston. This is the first time Ive done one of these big visits solo (without C) and I had a huge knot in my stomach leading up to her appointment. It doesn’t matter how many times I watch the ultrasound technicians scrolling the probe over her heart, I still get a sinking feeling!
The report couldn’t have been better. ECHO show that her dilating aortic root which has been of concern, has not grown any since her last visit – praise the Lord! It is something they will keep a close eye on for the rest of her life, but its a huge relief to know its not aggressively dilating!
A big milestone this visit was that it marked the first time we’ve been able to do an ECHO without sedation. She’s always been absolutely terrified of anyone in scrubs and sedation has been the only way to get her still enough for a good look at her heart. I thought she was ready this time, and she handled it like a pro.
She milked it for all it was worth…..watched cartoons, asked for a lollipop, and came home with a pocket full of Dora stickers.
Her GI visit wasnt quite as smooth. Weaning her off her reflux meds has not gone well. She’s begun waking every night crying in pain again, so he’s put her back on her drugs….booooo! Lower GI problems continue too. We are now starting a 3 day complete colon cleanse. Yes, its as unpleasant as it sounds! No better time than now to bump up the potty-training campaign!!
Sweet big sister Abi was my helper and accompanied me to all Evie’s appointments and talked her through her procedures! The girls had fun sister time in the hotel pool and eating Oreos in the king-sized bed! Trying to make lemonade out of the lemons and sweet memories from experiences we’d rather not have.