Transposition of the Great Arteries
This is no longer simply a chronicle of tests and procedures and frightening diagnosis. The blog today is peppered with more Pinterest projects and embarrassing mishaps in our life with 6 little monkeys than anything else.
Aside from a silver scar that peeks out above her dress, you would never know Evie was a “heart” kid. Most days are care-free and our Evie lives a normal, rambunctious, energetic life of a four year old, reading Fancy Nancy, dressing up in tutus, applying princess band-aids to skinned knees, playing baby dolls and manicures with hot-pink polish.
Double Inlet Left Ventricle, TGA & Interrupted Aortic Arch
But never far from our mind is the road that brought her to where she is today. Congenital Heart Awareness Week approaching February 7-12th, and I just had to share some of the faces that are my heroes. Did you know that 1 in every 100 babies is affected by some kind of heart defect? Its the #1 birth defect and is far more common than you would believe. Less than 10% of defects are diagnosed before birth. In America alone, 4,000 babies will not live to see their first birthday because of CHD’s. CHD’s are responsible for 1/3 of all infant defect-related deaths. There is a board that has started on Pinterest to raise awareness and share some of these amazing children (and adults) stories. I was literally in tears looking at the dozens and dozens of faces….beautiful precious children, that have bravely battled broken hearts.
|Megan 8 years old
ASD, PDA & Bicuspid Aortic Valve
|Caden 6 months
Aortic Stenosis and Coarctation of the Aorta
Complete Heart Block
For you heart mommas, there are instructions on the board for how to post a picture of your own little warrior!
Pin their stories.
Share their courage.
And expectant mommas, HAVE YOUR NEWBORN SCREENED….ask for a pulse-ox screening. Its inexpensive, non-evasive and it saves lives!!
Here are a few of the little lives battling the beast known as CHD!
Pinterest Faces of CHD Board